Tag Archives: cures

Working in hospice , Part One

So today was the wrap party for NaNo (National Novel Writing Month,) and I read from the stem cell book I worked on all through November. (Yep, it’s the planned book on this site, And the Blind Shall See: The Promise of Stem Cell Cures.) It came from the section on working in hospice with Alzheimer’s patients. People were really touched (and I’m not going to try to claim that it was from the amazing writing quality!) No, it’s because everyone can relate to the desperate need for cures for degenerative diseases. And yet it’s basically a situation where even the most educated people never know almost anything about what’s really going on with truly effective stem cell research (like Ocata’s.) If you’ve ever lived with the situation of caring for a relative who has a degenerative disease like Alzheimer’s, you know how utterly draining it is, how much it takes out of you. I saw it every single day when I worked hospice. And it isn’t just older people, believe me. There was one woman I knew who died of MS when she was only thirty-six years old. I’m going to put up a series of posts on working with patients who had degenerative diseases, and there’s quite a range of those. Alzheimer’s, other types of dementia, MS, COPD, severe arthritis, and on and on and on. These might not be the most cheerful stories in the world– but we’re working on a happy ending through regenerative medicine! 🙂

Incredible News About Stargardt’s Cure

So, I was posting a summary for my book on the NaNoWriMo Facebook page, thinking that it sounded over the top… stem cell-based cures for horrible incurable diseases within 2-10 years, that kind of thing… well….

There’s no link for this, because it is insider info from shareholders who went to Ocata’s quarterly meeting in Boston, which was not open to the public. (There is a LOT about Ocata in the book– they’re the biotech company that just changed their name from Advanced Cell Technology.) Ocata is the company developing the first cure (or even treatment!) for age-related macular degeneration, a disease that slowly causes blindness for 30 million people in the U.S. and Europe alone. The interim published results for the clinical trials have looked great, but as far as when this treatment might actually come to market… it’s everybody’s guess.

But in the quarterly meeting… several attendees have all said the same thing. The drug already has orphan treatment approval for a genetic disease caused Stargardt’s, which has exactly the same effects and eventually causes blindness. But it attacks much younger people, including children as young as six. (Yep, six years old.) AND… the CEO of Ocata said that the drug will be available in the U.K. in 2018. We don’t have absolute confirmation of this yet. But it’s apparently what was officially said at that meeting.

One of the lines of thought on the forums is that the date might be earlier for AMD approval in the U.S, even quite a bit earlier if the drug is fast tracked here… we just don’t know. But this is INCREDIBLE!!!~ There has never ever been any kind of treatment for Stargardt’s before, and now there will be, and it will be STEM CELL BASED. As of now, that will be the first drug approved anywhere in the WORLD that is embryonic stem cell based.

YES! IT’S THE START OF A NEW ERA IN MEDICINE!!! And it will be in the book!
(sorry about the capslock…

New twitter account! Yay!

Yep, it’s an all-new account, where I will TRY to express coherent thoughts in 140 characters. CAN I do it? Um… I have a book posted elsewhere that’s on Chapter 126 and still going. But anything is possible! Yes! I can do it! 🙂 Anyway, here’s the link:

About This Blog

So… this info is eventually going to go on a page of its own, but for now, I’m just going to say a few things here.

What’s this blog about?

  • Stem cell news
    Stem cell links
    Basic stem cell information
    Stem cell personal stories
    Stem cell rants.
  • Yep, there will be some rants here. If anybody DOESN’T want to read rants… well, Paul Knoefpler’s Blog is pretty non-ranty, and is written by a researcher in the hard sciences.
    Continue reading

    Stem Cells: The Most Important Medical Issue of Our Time.

    Stem cells. The hope, the hype; the successes, the failures; the frauds, the triumphs, and the miracles in the making. It’s all going to be here! Oh, okay; ALL of the information in the world about stem cells is probably NOT going to be found here. 😉 But if I can find it out… will be. There will be much more content here, including the story of just why and how I  became so passionate about the entire issue of stem cells and regenerative medicine.  I can honestly say that some of what you’ll read here is unique and cannot be found anywhere else the world. So just keep watching this space– some incredible things are coming up!